Using the National Spinal Cord Injury Model Systems Database
The National Spinal Cord Injury Model Systems (SCIMS) Database welcomes
the use of data for the purposes of
improving the lives of persons with spinal cord injury (SCI).
Public Access to De-Identified Data
De-Identified Data collected before September 1, 2021 are freely available for download. De-Identified Data are stripped of all HIPAA-defined identifiers,
including names, geographic subdivisions smaller than a state, elements of dates (except year) related to an individual,
telephone numbers, fax numbers, email addresses, social security numbers, and medical record numbers.
Title: National Spinal Cord Injury Model Systems Database
Author: Yuying Chen, MD, PhD
Distributor: National Spinal Cord Injury Statistical Center
Persistent identifier: DOI 10.17605/OSF.IO/NP24C
Available Data
Version 2021 AR
De-identified data collected before September 1, 2021 are available for request, including data obtained during initial hospital
care (Form I); data obtained at post-injury years 1, 5, 10, 15, 20, 25, 30, 35, 40, 45, and 50 (Form II); and mortality data (Record Status).
|
Dataset
|
No. Observations
|
No. Observations coded as Lost
|
No. Persons
|
No. Variables
|
Data Collection Period
|
|
Form I
|
35,675
|
NA
|
35,675
|
658
|
1972-2021
|
|
Form II
|
131,217
|
58,377
|
32,541*
|
325
|
1973-2021
|
|
Record Status
|
35,675
|
NA
|
35,675
|
12
|
NA
|
*The number of persons with useful Form II data (not coded as lost to follow-up) is 29, 310.
Version 2016 AR
De-identified data collected before October 1, 2016 are available for request, including data obtained during initial hospital
care (Form I); data obtained at post-injury years 1, 5, 10, 15, 20, 25, 30, 35, and 40 (Form II); and mortality data (Record Status).
|
Dataset
|
No. Observations
|
No. Observations coded as Lost
|
No. Persons
|
No. Variables
|
Data Collection Period
|
|
Form I
|
32,159
|
NA
|
32,159
|
417
|
1972-2016
|
|
Form II
|
113,360
|
52,645
|
29,202*
|
276
|
1973-2016
|
|
Record Status
|
32,159
|
NA
|
32,159
|
12
|
NA
|
*The number of persons with useful Form II data (not coded as lost to follow-up) is 26,184.